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This reminds me of what I came up with for my son. I gave up on the rest of the world but I did my best to “play attention” to him. Getting them dressed and fed and hair brushed and all that isn’t enough. They need play.

Most doctors are a waste of money for this disease

My mum has FTD and PPA. I'm sole carer. She's my mum in blood, but her soul has gone. It breaks my heart. You put it very eloquently. Thank you from Cardiff, Wales

Please look up dr. Ken Berry carnivore diet. It works!! A paradise for parents is a nursing home that put patients on ketogenic diet and some are going back home. We need fat, beef, cholesterol to build connective tissue and heal mylein sheath ! God bless!!!

I’m so sorry

I look after my Mom who has FTD... honestly it is draining, tiring and EXHAUSTING ... its just too close for me.. a conflict of interest..i shouldnt be telling my mother what to do..its not natural..and she resents it.. and we argue so much.she kicks against everything as she does not even realise she has it😢

I just lost my spouse from Alzheimer’s dementia. He lived with dementia for about 8 years. He was the type that threw away instructions and put things together without them. About 2 years after his diagnosis he broke 3 vacuums by taking them apart, misplacing parts and destroying the vacuum to the point where it couldn’t be repaired, he also broke a brand new washing machine. I’m not sure how many trips we made to the ER because he was in severe pain in his leg, knees, hip or back. There was never anything wrong but I had to be sure. Sundowning and sleepless nights, wandering and incontinence was more than I could handle. I placed him a memory facility and he died peacefully 4 months later. I will miss him but I’m glad he’s not suffering any longer.

Oh my God, I’m so sorry..how can anyone cope with this? I viscous disease. It’s been 12 years since this was aired….how is your life now Donna? 😢🙏🏻❤️

😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢

I love her! I am dealing with a spouse with dementia and I am so blessed with her presentations.

She is my hero. I have a husband with dementia and I wake up hating it. I cry everyday. HUGS to everyone who is dealing with this.

"Boredom is a disease of it's own" What a profound statement.

Thank you... my Reza has FTD and his doctors dont help me i have to find things like this for help and comfort...

Beautiful lady!

Thanks so much for this. As a nurse working in rural AB, I’m going to show this to my manager and start brining play back into the lives of our LTC patients. It is so sad to see them sitting in chairs all day just waiting around for meds or meals. We can do better. Knowledge is power and I thank you for making this video and sharing this information. I’m going to do my part to share this with as many nurses as I can.

Amazing talk. Thank you so.much.

Makes me feel so proud to be Canadian. What wonderful pair!!

Thank you Donna 🙏🏽

Thank you Ernie 🙏🏽

what type of nutritional resources were offered to you? @IFM Functional Nutrition addresses root causes of dementia

My husband passed from FTLD 7 years ago. It started with progressive aphasia and ended 6 years later with his death, totally dependent on me. I’ve just noticed a plethora of these videos on RUclips and have listened to a couple. Here’s the truth about FTLD and other dementias. You’re not going to find your loved one’s journey in these videos. What you will find is bits and pieces because each journey is different and unique to the individual. Ironically, I worked for Adult Protective Services investigating allegations of abuse and neglect against vulnerable adults. The one theme I saw running through the interactions between families and the victim many times was the belief initially the victim was purposefully being difficult and could change if they wanted to. When my husband was finally diagnosed, the one thing I wanted for him was to make sure he never felt like he was a burden. He passed peacefully at home 9 years after his initial diagnosis. It’s wasn’t easy but I would do it all again for him.

They seem to flourish .look at the guy running the country he has dementia and nobody is calling for the 25th amendment .no republican iis eithet but if trump had dementia he would have been removed imediately from office

This just guts me. I can't imagine. God bless you.

My husband was finally diagnosed 9 years after the symptoms began at age 63. The progressive aphasia stole his voice and I lost my best friend in 2016, totally dependent on me. I still miss him and so thankful he did not have the behavioral variant if FTLD.

my darling husband was diagnosed with Dementia/Alzheimer...only those who have gone through this very painful illness and death of a brain that was once amazing and brilliant and loving person can know, the grieving begins when symptoms become apparent....from my research, he has been suffering from Alzheimer for 15 yrs...even longer...i have so much sadness and pain wishing I had known then what was happening...it would have avoided so much resentment, lack of understanding....I will love him always...There is relief that he has been diagnosed and I now know how to handle his behavior and suffering...I am with him daily ...I don't want to miss anything...I am also caring for an elderly mother who is house bound...most importantly, God gives me the strength and removing mountains blocking our path ....I believe that my Darling will be in a Care facility...my thoughts and feelings are for the family and the one diagnosed...STAY STRONG...

Behaviour display frustration and aggression.

Stayed with her till the end. Top man...!

Wow. He may not show it in the video but I believe Ernie has a heart much bigger than most of us.

HUGE VIRTUAL HUG 🤗TO YOU SIR

Thank you for sharing

Thank you for your words. My heart felt them intensely. Dementia hit my mom (diagnosed at 69) 17.5 yrs ago and still going. It is cruel and painful to see someone that you love slowly or quickly slip away.

I am also suffering the same illness, already for 6 years at the age of 56. Still cognitive ok and have not the same awful thinks, but I have a weak bladder, no taste, no knowledge when I have to see the toilet. Luckily i live in a nursing home and I see the same reactions by my wife. Dementia is hard for those who are left. At the time there is no cure yet.

I guess listening to thus I take that Karen was happy with horrible disease unknowing... until the time of screaming and biting... the poor husband and children... the poor children worrying if they had inherited this genetically... so very very frighteningly sad. What causes this needs to be found... metals, water, pesticide poison in our food - what on earth is doing this. Hugs sent to Ernie and their kids.. ♥♥♥

What a wonderful presentation! I’m headed to the thrift store now for some things for my friend with FTD! I’m an RN but not working in that field now fyi❤️

Thanks for sharing

I feel for you.

.. ?

It is so hard...i can't cry any more because i have no tears left...

My mom was diagnosed at age 60.. Im only 38. My nan also has it. Im so scared Im going to get it and burden my wife and child whos only 4.

What a beautiful gift! You are both angels 😇 ❤

My beautiful dad succumb to this hideous disease. The most beautiful human being you could ever meet. My hero for ever

Excellent practical hands on video. I have been looking for this type of information for a long time while taking care of my brother. By any chance do you have a program that I can use to teach others on how to engage people with dementia. I don’t want to reinvent the wheel when you have already found the answers. Again thank you and I applaud you guys for treating people like human beings.

Proud to be African.

In Africa we take care of them in the home.

This was incredible!

I was diagnosed with FTD last year. I don't want to be, a, burden to my family. We should be allowed to die with dignity!

Thank you so much Donna for sharing your story. xxx

Heartbreaking..i worry about myself at 59..

Wonderful. Thank you for uploading and for the wonderful work. Will definitely use in my Home. ❤

Watching my sister be a caregiver to her dementia husband is heartbreaking. What we have found out is there is absolutely no help available for caregivers who aren't wealthy. Why don't churches have a caregivers day out where the caregiver can actually have just a couple of hours to breathe?